{"id":295,"date":"2017-12-14T15:14:38","date_gmt":"2017-12-14T20:14:38","guid":{"rendered":"http:\/\/www.myositis.org\/myositis-library\/podcasts\/"},"modified":"2025-10-16T14:05:47","modified_gmt":"2025-10-16T18:05:47","slug":"podcasts","status":"publish","type":"page","link":"https:\/\/www.myositis.org\/myositis-library\/podcasts\/","title":{"rendered":"Podcasts"},"content":{"rendered":"

This curated collection of informative podcasts by myositis experts, including those who live with myositis, covers topics ranging from patient stories to the forms of myositis, treatments, complications, research, and more.<\/em><\/p>\n

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TMA’s Myositis Family Podcast<\/h2>\n

The myositis diagnosis and journey is different for each person and includes more than the individual. The Myositis Family Podcast<\/em> offers stories from TMA members to provide support, information, inspiration and hope for our myositis family and care partners<\/p>\n

Click here to listen to the series<\/strong><\/a><\/p>\n

Season 2<\/h3>\n
Episode 3\u00a0<\/a> Corene shares her journey with MDA5 DM, from the onset of rashes and joint pain through several misdiagnoses to her eventual diagnosis.<\/div>\n
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Episode 2<\/a>\u00a0 Chuck shares his journey with dermatomyositis, from its harrowing start into a place of acceptance and recovery.<\/div>\n
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Episode 1<\/a>\u00a0 Eric shares his journey with dermatomyositis, from its gradual start and misdiagnosis to full blown, classic DM symptoms.<\/div>\n
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Season 1<\/h3>\n
Episode 12<\/a> Krista shares her journey with dermatomyositis that was complicated by other chronic neuromuscular, cardiac, and pulmonary diseases.<\/div>\n
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Episode 11<\/a> Malati shares not only her journey with IBM but also some tips for thriving with this disease.<\/div>\n
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Episode 10<\/a> Molly shares her journey with dermatomyositis, along with how important her family is in supporting her.<\/div>\n
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Episode 9<\/a> Colleen shares her journey with an initial diagnosis of polymyositis and then rediagnosis with immune mediated necrotizing myopathy. Hear the amazing story of how her horses made adjustments to accommodate her condition.<\/div>\n
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Episode 8<\/a> Fiona shares her journey with dermatomyositis and the years of ups and downs until she took control of her recovery.<\/div>\n
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Episode 7<\/a> Jason shares how his diagnosis has affected his family and his tips for family and care partners.<\/div>\n
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Episode 6<\/a> Robert shares his journey with dermatomyositis, from a place where he could barely move at all through a number of unsuccessful treatments and how his condition affected his family.<\/div>\n
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Episode 5<\/a> Barbara shares her journey with antisynthetase syndrome and interstitial lung disease. Even with her medical background, Barbara faced similar struggles with getting diagnosed and treatment.<\/div>\n
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Episode 4<\/a> Bruce shares his journey with inclusion body myositis that seems to have come out of nowhere and how he is managing this progressive disease.<\/div>\n
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Episode 3<\/a> Danielle shares her journey with dermatomyositis, from its harrowing start to a place of acceptance and recovery.<\/div>\n
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Episode 2<\/a> Vuma shares her journey with dermatomyositis and polymyositis, undergoing a battery of tests before being diagnosed.<\/div>\n
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Episode 1<\/a> Elisa shares her journey with dermatomyositis that came on suddenly and so intensely that over a weekend she was hospitalized and unable to move. She describes how she pulled herself out of this harrowing situation.<\/div>\n<\/div>\n
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Myositis Expert Podcasts<\/h2>\n

TMA medical advisor Dr. Andrew Mammen gives an overview of myositis and discusses the specifics of polymyositis.<\/p>\n

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