{"id":264,"date":"2017-12-14T15:06:11","date_gmt":"2017-12-14T20:06:11","guid":{"rendered":"http:\/\/www.myositis.org\/patient-support\/support-groups\/"},"modified":"2025-08-11T15:58:51","modified_gmt":"2025-08-11T19:58:51","slug":"support-groups","status":"publish","type":"page","link":"https:\/\/www.myositis.org\/patient-support\/support-groups\/","title":{"rendered":"Patient and Care Partner Support"},"content":{"rendered":"

Living with a rare disease like myositis can feel isolating, but connecting with others helps. TMA offers support groups for patients and care partners to share experiences (not medical advice). You can join any group, regardless of location\u2014even internationally. Check the list of groups <\/a>to register. Membership is free\u2014join here<\/a>.<\/p>\n

TMA Worldwide: Patient & Care Partner Support by Diagnosis\u00a0<\/h2>\n

\"\"<\/p>\n

Join the TMA Worldwide Myositis Support Group<\/strong>, held monthly on the first Saturday<\/strong> from 1\u20132:30 pm ET \/ 10\u201311:30 am PT<\/strong>. It offers diagnosis-specific breakout rooms and a separate space for care partners. Open to anyone worldwide, this virtual group provides a safe, supportive space to share experiences and find community. Patients and care partners should attend separate rooms for privacy and healing. No medical advice\u2014just real stories, support, and connection.<\/p>\n

Register for TMA Worldwide<\/a><\/p>\n

Regional Support Groups<\/h2>\n

TMA\u2019s regional support groups connect local members to share support and ideas. Your contact info is only shared within your group. Led by peer volunteers, these groups meet virtually or in person and may include events or speakers. If you’re outside the U.S., please attend TMA Worldwide or email us<\/a> about starting a group near you!\u00a0<\/p>\n

Find Your Support Group<\/a><\/p>\n

Affinity Groups<\/h2>\n\n\n

TMA affinity groups bring together people with shared identities or experiences beyond myositis\u2014like veterans, people of color or LGBTQIA+ members\u2014to create safe, supportive spaces. These groups promote inclusion, amplify patient voices, and help raise awareness, improve care access, and support advocacy efforts aligned with TMA\u2019s mission.<\/p>\n\n\n

<\/span>Find Your Affinity Group<\/a><\/span><\/p>\n

One-on-One Peer Support<\/h2>\n

If you’ve participated in TMA support or affinity groups but still need more personalized guidance, TMA offers one-on-one peer support. This allows you to connect individually with someone who has faced similar challenges and can offer understanding, encouragement, and insights from lived experience. While we don\u2019t provide medical advice, these conversations can help you explore options to discuss with your healthcare team. When requesting peer support, please let us know your diagnosis and where you live.<\/p>\n

Request 1×1 Peer Support<\/a><\/p>\n

Becoming a TMA Support or Affinity Group Leader<\/h2>\n

If would like to become a Support or Affinity Group Leader, TMA provides training, certification and resources that can help. To volunteer for this role, please fill out our volunteer survey<\/a>.<\/p>\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Living with a rare disease like myositis can feel isolating, but connecting with others helps. TMA offers support groups for patients and care partners to share experiences (not medical advice)….<\/p>\n","protected":false},"author":189,"featured_media":16627,"parent":263,"menu_order":127,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-264","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nPatient and Care Partner Support - The Myositis Association<\/title>\n<meta name=\"description\" content=\"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myositis.org\/patient-support\/support-groups\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patient and Care Partner Support - The Myositis Association\" \/>\n<meta property=\"og:description\" content=\"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.myositis.org\/patient-support\/support-groups\/\" \/>\n<meta property=\"og:site_name\" content=\"The Myositis Association\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/Myositis\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-08-11T19:58:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"940\" \/>\n\t<meta property=\"og:image:height\" content=\"300\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@themyositisassc\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/\",\"url\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/\",\"name\":\"Patient and Care Partner Support - The Myositis Association\",\"isPartOf\":{\"@id\":\"https:\/\/www.myositis.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg\",\"datePublished\":\"2017-12-14T20:06:11+00:00\",\"dateModified\":\"2025-08-11T19:58:51+00:00\",\"description\":\"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.myositis.org\/patient-support\/support-groups\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage\",\"url\":\"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg\",\"contentUrl\":\"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg\",\"width\":940,\"height\":300,\"caption\":\"Patient and Care Partner Support\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.myositis.org\/patient-support\/support-groups\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.myositis.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patient and Care Partner Support\",\"item\":\"https:\/\/www.myositis.org\/patient-support\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Patient and Care Partner Support\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.myositis.org\/#website\",\"url\":\"https:\/\/www.myositis.org\/\",\"name\":\"The Myositis Association\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.myositis.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.myositis.org\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.myositis.org\/#organization\",\"name\":\"The Myositis Association\",\"url\":\"https:\/\/www.myositis.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.myositis.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.myositis.org\/wp-content\/uploads\/2017\/12\/site-icon.png\",\"contentUrl\":\"https:\/\/www.myositis.org\/wp-content\/uploads\/2017\/12\/site-icon.png\",\"width\":\"512\",\"height\":\"512\",\"caption\":\"The Myositis Association\"},\"image\":{\"@id\":\"https:\/\/www.myositis.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/Myositis\/\",\"https:\/\/x.com\/themyositisassc\",\"https:\/\/www.youtube.com\/user\/MyositisAssociation\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Patient and Care Partner Support - The Myositis Association","description":"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.myositis.org\/patient-support\/support-groups\/","og_locale":"en_US","og_type":"article","og_title":"Patient and Care Partner Support - The Myositis Association","og_description":"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.","og_url":"https:\/\/www.myositis.org\/patient-support\/support-groups\/","og_site_name":"The Myositis Association","article_publisher":"https:\/\/www.facebook.com\/Myositis\/","article_modified_time":"2025-08-11T19:58:51+00:00","og_image":[{"width":940,"height":300,"url":"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_site":"@themyositisassc","twitter_misc":{"Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/","url":"https:\/\/www.myositis.org\/patient-support\/support-groups\/","name":"Patient and Care Partner Support - The Myositis Association","isPartOf":{"@id":"https:\/\/www.myositis.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage"},"image":{"@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage"},"thumbnailUrl":"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg","datePublished":"2017-12-14T20:06:11+00:00","dateModified":"2025-08-11T19:58:51+00:00","description":"The Myositis Association provides several support group options, including Keep-in-Touch support groups and the MYO-Connect program.","breadcrumb":{"@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.myositis.org\/patient-support\/support-groups\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/#primaryimage","url":"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg","contentUrl":"https:\/\/www.myositis.org\/wp-content\/uploads\/2024\/05\/Patient-and-Care-Partner-Support.jpg","width":940,"height":300,"caption":"Patient and Care Partner Support"},{"@type":"BreadcrumbList","@id":"https:\/\/www.myositis.org\/patient-support\/support-groups\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.myositis.org\/"},{"@type":"ListItem","position":2,"name":"Patient and Care Partner Support","item":"https:\/\/www.myositis.org\/patient-support\/"},{"@type":"ListItem","position":3,"name":"Patient and Care Partner Support"}]},{"@type":"WebSite","@id":"https:\/\/www.myositis.org\/#website","url":"https:\/\/www.myositis.org\/","name":"The Myositis Association","description":"","publisher":{"@id":"https:\/\/www.myositis.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.myositis.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/www.myositis.org\/#organization","name":"The Myositis Association","url":"https:\/\/www.myositis.org\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.myositis.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.myositis.org\/wp-content\/uploads\/2017\/12\/site-icon.png","contentUrl":"https:\/\/www.myositis.org\/wp-content\/uploads\/2017\/12\/site-icon.png","width":"512","height":"512","caption":"The Myositis Association"},"image":{"@id":"https:\/\/www.myositis.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/Myositis\/","https:\/\/x.com\/themyositisassc","https:\/\/www.youtube.com\/user\/MyositisAssociation"]}]}},"_links":{"self":[{"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/pages\/264","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/users\/189"}],"replies":[{"embeddable":true,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/comments?post=264"}],"version-history":[{"count":3,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/pages\/264\/revisions"}],"predecessor-version":[{"id":27504,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/pages\/264\/revisions\/27504"}],"up":[{"embeddable":true,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/pages\/263"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/media\/16627"}],"wp:attachment":[{"href":"https:\/\/www.myositis.org\/wp-json\/wp\/v2\/media?parent=264"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}