{"id":2257,"date":"2018-03-02T12:09:30","date_gmt":"2018-03-02T17:09:30","guid":{"rendered":"http:\/\/www.myositis.org\/?page_id=2257"},"modified":"2025-10-10T10:48:32","modified_gmt":"2025-10-10T14:48:32","slug":"non-drug-studies","status":"publish","type":"page","link":"https:\/\/www.myositis.org\/research\/clinical-trials\/non-drug-studies\/","title":{"rendered":"Registries and Natural History Studies"},"content":{"rendered":"\n
Name<\/th>Eligibility<\/th>More information<\/th><\/tr><\/thead>
Adult and juvenile myositis<\/strong><\/td>Adults and children with DM, PM, IBM, and related conditions<\/td>More details<\/a>; NIH – Lisa Rider
301-451-6272
NCT00017914<\/td><\/tr>
Environmental risk factors for antisynthetase syndrome<\/strong><\/td>Adults and children with myositis, with or without ASyS autoantibodies<\/td>More details<\/a>;
NIH – Adam Schiffenbauer
301-451-6270
NCT00017914<\/td><\/tr>
Evaluation of clinical responsiveness of DM using cutaneous DM diseases area and severity index (CDASI)<\/strong><\/td>Adults with DM and skin disease<\/td>More details<\/a>;
Victoria Werth
215-615-2940
NCT02945345<\/td><\/tr>
IBM disease registry at Yale<\/strong><\/td>Adults with IBM<\/td>More details<\/a>;
Kurt Petschke
203-785-6453<\/td><\/tr>
IBM natural history study (INSPIRE-IBM)<\/strong><\/td>Adults > 40 y\/o with IBM<\/td>More details<\/a>;
NIH – Tahseen Mozaffar
714-456-2525
NCT05046821<\/td><\/tr>
Natural history of autoinflammation diseases and JDM<\/strong><\/td>Children and adults > 2 y\/o with autoimmune disease, including JDM<\/td>More details<\/a>;
NIH – Hanna Kim
301-594-6196
NCT00059748<\/td><\/tr>
Natural history of inflammatory muscle diseases <\/strong><\/td>Children and adults >12 y\/o with IIM
Healthy controls > 18 y\/o<\/td>		More details<\/a> NIH – Andy Mammen
301-594-6667
NCT05738824<\/td><\/tr>
Rheumatology patient registry and biorepository<\/strong><\/td>Adults with rheumatic autoimmune disease<\/td>More details<\/a>;
Nicolas Page
203-737-5571
NCT04402086<\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Name Eligibility More information Adult and juvenile myositis Adults and children with DM, PM, IBM, and related conditions More details; NIH – Lisa Rider301-451-6272NCT00017914 Environmental risk factors for antisynthetase syndrome…<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":278,"menu_order":212,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-2257","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nRegistries and Natural History Studies - The Myositis Association<\/title>\n<meta name=\"description\" content=\"Check out a table outlining non-drug research studies for myositis, including the name of the study, eligibility and additional details.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myositis.org\/research\/clinical-trials\/non-drug-studies\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registries and Natural History Studies - 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